POUR
Event & Fund Rasiers
Events
There are many amazing ways to support scleroderma patients and scleroderma research! My family and I try to get involved with as many as possible! The Scleroderma Research Foundation (SRF) has an annual fundraiser "Cool Comedy Hot Cuisine". The Scleroderma Foundations of both Greater Chicago and California host fundraising walks to support patients. I have also started fundraising for the Scleroderma Kids & Family Camp (Lake Hughes, CA). We also love to support the Sophie Anne Foundation which raises funds to help cover travel expenses for scleroderma kids seeking medical care from UPMC. My family is also supporting pediatric scleroderma research through CARRA.
Cool Comedy Hot Cuisine
Cool Comedy Hot Cuisine was October 28, 2024 in Los Angeles California and is a fundraiser to benefit the Scleroderma Research Foundation. They raised over 1.3 million dollars in one night for Scleroderma research! My mom and I attended this event to support research.
T-shirt Fundraiser for Kids Camp!
Kids with scleroderma have never had a camp of their own. Attending camps for kids with other diseases leaves scleroderma kids feeling left out, marginalized, and awkward. Having such a rare disease, it is critical for kids to have friends to bond with!
Sophie Anne Fund - UPMC Childrens
Sophie Anne is a fellow scleroderma patient. Sophie Anne and I both see Dr. Kathryn Torok, a pediatric scleroderma specialist at UPMC Children's Hospital in PIttsburgh. The Sophie Anne fund was created to help with travel expenses for patients who need to see Dr. Torok. This fund ensures that children receive top-notch scleroderma care.
Organizations We Work With
